I know it's been awhile since my last post and I thought it was about time I post another entry. First I want to admit that I haven't been updating this blog because I'm working on something right now that I feel is more important. This blog helped me realize how important a subject I feel epilepsy to be. It's so misunderstood and because of that many people with epilepsy face unfair treatment in unexpected places. All epileptics deal with the possible SUDEP differently. There are people like me who are determined to live a normal life despite the threat of Sudden Unexplained Death due to Epilepsy. To fear what could be is live in a world of fear which I refuse to do. Then there are others who do live in fear and let that fear dictate how they live. Many refuse to learn to drive or to even boil water on a stove for fear of having a seizure at the wrong moment. I understand their fears and do realize my particular case is mild compared to many, but I see so much wasted potential in their lives. I am always hoping they find courage to live the life they deserve.
I've decided to step back from this blog because I have felt a calling in my writing. A calling I've been trying my hardest to ignore for a long time. I feel like I'm being led to write a novel loosely based on my own experiences as an epileptic. I stress the word loosely. There are other stories of the realistic fiction genre I have been feeling compelled to write for a long time, but have been trying to ignore. Mostly I've tried ignoring these stories because it means thinking on things I don't like to dwell on. For me the best way to deal with my epilepsy and pursue that normal life has been to pretend that I don't have epilepsy, but through this blog I've come to understand I truly have a passion for getting the truth out there. I think I will be able to better do that through a story. So I'm finally letting God lead me in this writing and am officially putting my fantasy stories to the side. I may never finish them. Honestly they were a tool that got me through everything. It was my way of escaping reality. I don't feel the need to escape anymore, because for the first time in a long time I'm truly happy with life.
I'm not going to shut down this blog. Instead I'll post only every once in awhile. I'm may write about my past experiences or talk about current progress of the story I've decided to call "Craving Normal". My personal deadline for a rough draft is the end of November. I'm still outlining at the moment. If you are a regular follower of this blog feel free to pester me about my progress. I'm famous for procrastinating. If you want to get a feel for my writing style head over to my other blog imaginary worlds. I won't be posting any short stories by me anytime soon, but while I work on my story I will be posting stuff from my great grandma. She is an amazing writer and a bit a head of her time. My husband helps me with posting her things so this blog is more regular. My own original work is on there to, but I'm taking a hiatus from short stories unless I feel strongly I need to write something.
In other news I'm pregnant with my first child. A experience when planning that is filled with worry. Any epileptic planning to have a child (woman wise at least) has a lot of added risks. So when we knew we were ready to start growing our family we sought a OB that had expeierence with epileptics. At first I was classified as high risk and I saw a OB that was considered a fertility specialist, but has had extensive experience with epilieptics. Once I became pregnant my numbers were very healthy and I switched to a normal OB that also has experience with epileptics. To this OB my epilepsy is no big deal because one she can handle it and two it hasn't been an issue thus far. We are expecting a baby boy and I've had a normal pregnancy so far. A lot of worry that wasn't neccessary. The only thing I have expereicned that is something that happens to epileptics is sometimes my speech is impaired. For example I won't be able to say certain sounds for periods of time. Usually a vowel sound. It's more humourus than serious. From research my husband and I have done it's normal and nothing to worry about. It should stop once the baby arrives.
That 's all for now. God Bless you all!
Susan,
ReplyDeleteI am so excited for you and Tony and really can't wait to meet my great nephew! You have come along way babe! Looking forward to reading your new story in November! Love you!
Aunt Leslie